Letter from Amanda

by admin
Comment Closed

Hi Maralyn!

Jane has been to A&E about 8 times, I should think, since she was
16. We tend to take her to Airedale if we opt to take her to A&E and have
only had good experiences.

I think 3 times she has been admitted from A&E – again Airedale good but Bradord Royal Infirmary less so. I think Bradford Royal Infirmary have probably moved on a bit since Jane’s admissions which were not good – huge open wards then and we were left to our own devices.

No help with food and personal care unless we were there to do it. Inappropriate surroundings – large ward with people around Jane who were in distress which was upsetting for her.  Her admission at Airedale was better – in that she was in a smaller ward which was less stressful for her but still little assisstance around eating and personal care.

The ‘good’ experiences in A&E I think is due partly to being treated
by young doctors (still in Training or ‘New Doctors’) who are now more clued up
on special needs. Doctors and consultants on wards are, still too often, ‘old
school’ .

Once on a ward – staff are just too busy with paperwork and chasing their tails
to get involved on a personal level. Understaffing and no-one with the time to
keep a check on vulnerable and less able patients.

I think there needs to be a small team of auxillieries dedicated to
special needs patients – whose job it is to act as intermediaries between
patient, parents and the medical staff.

Parents are too stressed to be able to interact with the calm and
composure that is needed when dealing with doctors, consultants and nurses  (all too god-like in their own opinions! – sorry that was just me going off on
one!!!!) How on earth patients with special needs go on when they dont have
parents to sit by the bedside 24/7  is a mystery to me – maybe they just die
- who knows!

Back to my point – their job would be to check patient regularly and
frequently to ensure he/she is comfortable, has eaten or been fed, has had
fluids, is clean, been to toilet, has had medication on time, is responding as
expected to treatment. To act as a go between with the medical staff, reminding
them of medication times, reporting back any thing that is not going to plan
etc. Also to interact with the patient from time to time and make sure they
have something appropriate to do – music,colouring, reading, magazines, jigsaws

Lack of funding will be the reason given for this – but I think from
reading your experience with Leeds General Infirmary – had there been someone like this on hand then Kristians stay might have been shorter and less expensive for them and better for you all. I.E It would be cost effective.